Monday, 13 October 2014
|Registration and arrivals
|SESSION 1: EXPERIENCE, THE VERY IDEA
Welcome and introduction to the symposium. Three members of the organising committee will discuss how the concept of ‘experience’ is understood and used in their respehctive disciplines.
|SESSION 2: EXPERIENCES OF ILLNESS AND PATIENT KNOWLEDGE
This panel will focus on personal experiences of illness, on how the notion of experience has been addressed in the Philosophy of Medicine, and on what is distinctive about ‘patient knowledge’.
Phenomenology of Illness: a Philosophical Account of ‘Patient Experience’
Experience is not evidence
Discussant: Dr Fadhila Mazanderani
|SESSION 3: THE ‘PATIENT EXPERIENCE’ IN HEALTHCARE
Two experts with extensive experience in healthcare research, policy and practice relating to patient experience will reflect on their understandings of the concept of ‘experience’, on how they have used it in their own work, and on how it is used in healthcare research and medicine more generally.
‘Hands off our stories’. Exploring the legacies of patient narratives ‘captured’ for quality improvement
The use of critical ethnography to capture the experience of illness and disability
Discussant: Neil Churchill
|Coffee and tea
|SESSION 4: PATIENT ORGANISATIONS AND EVIDENCE-BASED ACTIVISM
Special session on the findings of the project ‘European Patient Organisations in a Knowledge Society’, with particular focus on the notion of evidence-based activism and on how this relates to understandings of experience and experiential knowledge.
Patients’ organisations and ‘evidence-based activism’
Discussant: Dr Louise Locock
|There will be a bar available on site immediately after the session.
|Dinner (registration required)
Tuesday, 14 October 2014
|Coffee and tea
|SESSION 5: EXPERIENCE, EXPERIMENT AND EVIDENCE
This panel will explore the interconnections between the concepts of experience, experiment and evidence in healthcare and how crowdsourcing is intervening in this. The panel will consider whether we need to rethink how these concepts are approached.
‘Existence precedes essence’: ageing, self-rated health and the sciences of subjectivity
Crowdsourcing for quality improvement? Questioning the rise of rating and recommendation sites in healthcare
Discussant: Dr James Munro
|SESSION 6: EXPERIENCE BY DESIGN
This panel will focus on the relationship between design and experience in relation to technologies that are being developed to foster new forms of engagement and interaction, including reflections on ‘user experience’.
From experience to quantification to co-production: reflections on patient reported outcomes in an online patient community
Doing Speculation to Curtail Speculation
Discussant: Professor Steve Woolgar
|SESSION 7: THE FUTURE OF EXPERIENCE?
How are new technologies intervening in the enactment of experience and what are some of the consequences of this? Both speakers will discuss this question in relation to their own work – the first, in the quantified-self movement; the second, in neuro-imaging.
Experience in/as a Platform
Interviewing the brain? What happens to experience in (neuro)market(ing) research practice
Discussant: Dr Malte Ziewitz, Cornell University
|CLOSING SESSION: WHAT’S NEXT?
Building on reflections by Farzana Dudhwala, Rosamund Snow and Teun Zuiderent-Jerak, we will ask: what have we learned over the past two days? What’s next?